Today is Monday. Mondays are always hard on me. Ethan has therapy at 8:00am where an early intervention team comes to our home and works with him. Once they leave, I get him
ready for the day and then loaded up into the van for speech therapy. Before heading out, I pull out photos of the building, his speech therapist, his favorite toy there, and the waiting room. This is part of our new picture exchange communication system that is supposed to help with his transitions. By 11:00, we’re off to speech therapy. At the end of these multiple morning sessions, his therapists will update me on his progress and then ask me
a myriad of questions pertaining to his “homework” for that week- whether it be
specific speech or behavioral goals, learning new signs, or following new
commands. Sometimes I have good news for them, sometimes I don’t. This week, I
was happy to report that he has started to actually understand me when I tell
him to “sit down" without any gestural prompts. I’m always excited to share good news with them, but I just can’t
seem to quiet that voice in the back of my mind saying “are you REALLY
celebrating this right now? Your two and a half year old learned a simple
command that he should have known over a year ago. That’s not a cause for
celebration…” And that’s when the mom guilt gets me. That’s when I start to
question why he is the way he is, what I have or haven’t done to help him
enough, what I could be doing to help him more, why we’ve gone through months
of therapy and he still isn’t speaking. Mom guilt… It haunts us all, but
experiencing what I have with Ethan has taken it to a level that I didn’t even
know existed. And Mondays are the worst. We spend our mornings in therapy and I
have the rest of the day to think about all those questions from the professionals and all of the progress we haven’t made yet. Once we’re home, I put the kids
down for a nap, and I’m alone with my thoughts. I think about his IFSP and his upcoming IEP and all of the other documents and goals and progress records and new commands
and signs that I have been tasked to teach him in the upcoming week. When he
learns and retains something new, I get that “Christmas morning” feeling that I used to get
as a child. Sheer excitement and joy. When he doesn’t meet a goal, I feel like
a failure.
This is where prayer comes in…
Mondays are hard…
But life is hard and I will have to get
through many more Mondays.
I will get through them with God on my side. I will
not let the adversary win. I will continue to pray when things get hard and
praise God every chance I get. The Book of Psalms tells us that children are a
blessing from the Lord and I believe that with my whole heart. I have been
blessed with three of them- all with their unique strengths and weaknesses. I
know I have been fully equipped to raise them up in my loving care,
despite any obstacles that we may face along the way. I will continue to pray,
not only for myself, but for my children <3
Love this. Love you!
ReplyDeleteBeautiful Chelsea! This is all so true. I agree 100%.
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